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It is terrible to think that people cannot get their formula. How primitive is this!! Maybe associations should get involved and kick some butts!!
Seriously some actions need to be taken as it is vital that we get formula for our well being as you all know!! Good luck
debbie colyer
i understand aaron, if i dont have my formula i am starving all day so i never do as well on my diet as i should!
Kelli
kelliwrenn76@yahoo.com
write me anytime
well i called the health department again today and they still dont have my formula. it has been 3 weeks ago today. maybe they will have something i can have at the clinic tomorrow.
Kelli
kelliwrenn76@yahoo.com
write me anytime
What is taking it so long kelli?? That seems like an awful long time!
Wow, that is awhile. Do you atleast have formula left holding you off until then?
~It's not about waiting for the storm to pass, it's about getting out there and dancing in the rain~
Breanna Hardy 19 CPKU
Kelli that sounds like ages to me! And ot seems you still have no idea when you get it
Have you done your blood test while you are out of Formula? If yes how were they? That is so stiupid as Debbie wrote we must have our Formulas without any breaks!
Greets
Gosia
'Where you live should not decide
Whether you live or whether you die'
I hope you get this sorted out soon Kelli have you talked to your clinic sometime they have a supply
Carrie Hall
25 CPKU
Ottawa, ON
Expecting baby #1 Nov.19
well it was supposed to be in 3 weeks ago yesterday but i go to clinic today and i am hoping they can get me something to tide me over anyway
Kelli
kelliwrenn76@yahoo.com
write me anytime
kelli you dont have your formula yet that really stinks
Hey Kelli how terrible to have so much trouble in getting your formula! Hope that you don't have to wait too much longer!
debbie colyer
you are so right aaron. it is almost 4 weeksnow and one of my dieticians just left me a voicemail and told me to call the health department in 2 days and if it isnt there yet to call her back. my levels were all the wway up to 17 because of it!
Kelli
kelliwrenn76@yahoo.com
write me anytime
this is getring serious kelli is there anything anyone can do to help? maybe ship a can of formula until then? I dont know if it will get across the boarder if i send it
Carrie Hall
25 CPKU
Ottawa, ON
Expecting baby #1 Nov.19
it aint fair that you dont have any thats not right at all i hope you file some sort of complaint
Kelli
This is so unfair! Gosh you are out of your Formula for 4 weeks, and it seems that you are the only one who is trying to get it by calling the dietetician. This is really insane! I think you should go to his or hers boss and talk to him. The worst thing is your Phe level is so high as a result of not taking Formula for so long. Can you tell me what is your Formula? I don`tknow how Formula`s distribiution looks like in th USA maybe you should try to call to person who is responsible for that and maybe also the company that produces your Formula.
Greets
Gosia
'Where you live should not decide
Whether you live or whether you die'
Departments not being able to get formula is so primitive that nobody should have to put up with. Are you able to ring a PKU clinic interstate. Maybe they can send you samples. It is amazing that your dietitian and your PKU are not doing more to help! I have to agree with Gosia's comments that this is just insane and heads should role for this as the formula is our diet!! Maybe I have come on too strong. It isn't them who is suffering because of their stuff ups getting the formula for you!
debbie colyer
you knoow this happens a lot to ppl i think that hospitals have to be a little more careful
I agree with you all, Kelli this all is horrible! Exspecially since your dietitian and doctor aren't doing more to help you get your formula. Even a few samples is better then nothing. I really hope you get your formula soon because this is starting to sound ridiculous!
~It's not about waiting for the storm to pass, it's about getting out there and dancing in the rain~
Breanna Hardy 19 CPKU
i agree. we have a new person ordering from now onso maybe this is taken care of now! i hope so!!
Kelli
kelliwrenn76@yahoo.com
write me anytime
i see the problem now whenever i get someone new that person takes about a month to get my stuff
Hey Kelli hope that you have your formula now and they have sorted themselves out and will have the formula soon after you order in the future! Good luck!
debbie colyer
Wednesday, September 8th 2010, 11:10am
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