Pku Board

I get over half my calories from formula. Formula is EXTREMELY filling and full of calories, if your kids are finding themselves hungry throughout the day, I suggest going to your clinic and maybe upping their formula intake

ive found in my life that different formulas have had different effects on me periflex was extremly filling for me so much so that i have contemplated going back on it just for my morning formula
but PKU express isnt so bad either in the morning i mix it in the blender with juice and europes best frozen fruits and at times i even add a little honey

truth is we all react to formula differently and the advice i can give you is to try some different ones and see which ones the boys feel more full on

( by the way maureen it was my pleasure)

I don't find my formula filling but satifying. I just like higher Phe food which is a big problem for me.

Maureen, I think it depends. Right now I drink the PKU express coolers and those are filling to some extent, but not to the point where I can't eat anything else. On the other hand I had to stop taking Phenylade because it filled me up to much to the point where I wouldn't want to finish it because it gave me stomach aches. I'm back on Phenylade (along with the coolers and XPhe maxmum juice boxes) but that is only because I'm on Kuvan and need to add powdered milk into my formula and phenylade is the easiest to do that with.

Also I guess fruits and veggies might fill them because they're little. I remember when I was little I got full so fast that I wouldn't gain wait and it got to the point where when I was 6 I weighed about 32lbs, my mom was accused of malnurition (which of course was bologna) and she had to start counting calories to help me gain weight.

Hey Maureen, good to see you here, sorry for not suggesting it sooner

I get full on my formula pretty easy. when i get hungry at a time between meals I drink my formula instead of eating, when I am at home, aaround 5 or six i have formula or food and then around 9 have the one that I didnt have.

I also have a terribly small appiete anyway and sometimes eat veggies or salad as a meal

I dont know if you heard that I am writing a book, i was wondering if i can email you some questions sometime.
talk soon

Great thanks.
i think it is one of the most filling, when do you give it to them and when do they eat

I am on Phenyl-Free 2 and I find it pretty filling. I have a gigantic appetite, always have...but 4oz of my formula and 2 servings of veggies or fruit (or one of each) will fill me up.

I'm on Phenyl-Free 2 as well.