How do you drink your formula ?

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Flashdancer

Administrator

Posts: 6,186

Location: Frankfurt am Main

Occupation: Investmentspezialist für strukturierte Produkte

Last bloodlevel: 10.88 mg/dl

Saturday, June 14th 2008, 9:13pm

How do you drink your formula ?

Hello everyone,

I just want to know how do you drink or eat your formula an how often do you take it ??

It take my forumla with Orange juce about three times a day.

Ich bin keine Signatur, ich putze hier nur

Bitte den Feedback-Bereich für Fragen zum Forum nutzen. Danke.

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Amanda Christina

Moderator

Posts: 252

Saturday, June 14th 2008, 9:21pm

I drink the Xphe maximum orange tetra packs, there premade and are just like juice boxes. i drink one with each meal and one before bed. i love them and they taste great. sometimes i wish i could drink more. lol

Amanda Cosburn LPN
24CPKU
Victoria BC Canada BC Repersentative on CanPKU
President of PKU Tri-Unity
creator of http://www.freewebs.com/pku-tri-unity/
and http://pkucookery.ning.com/

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Sabrina

Moderator

Posts: 3,575

Saturday, June 14th 2008, 9:30pm

I drink the PAM Anamix together with PAM Maternal and water also 3 times a day...it´s great because you can find water everywhere when you are on the way (for example business etc.)

I do that since i was a child

Jan André: *04.10.2007 (49cm/3150g/keine PKU)

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Engelchen

Moderator

Posts: 12,144

Saturday, June 14th 2008, 9:50pm

i drink PAM maternal in water too. on 3 times a day.

Mein Link

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Breamarie91

Professional

Posts: 1,100

Location: Wisconsin

Occupation: I am working on a degree in nursing and would like to work in genetics!

Saturday, June 14th 2008, 10:01pm

I drink the XPhe Maxamum juice boxes like Amanda, so they're premade...and the PKU express coolers and they're premade to...and Phenylade chocolate, which isn't premade. I have to fight with my little sister over our cups that we make our formula in when I want to make the Phenylade. We have about 5 of them, but she always makes her formula and leaves them around the house. We always find them, but only because they start to rot and smell!!!

I'm suppose to take 2 juice boxes, or 2 coolers, or 3 scoops of phenylade or some sort of combonation of that (to get 25-30g of protein).

~It's not about waiting for the storm to pass, it's about getting out there and dancing in the rain~
Breanna Hardy 19 CPKU

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Engelchen

Moderator

Posts: 12,144

Saturday, June 14th 2008, 10:06pm

@brea
your sister have PKU too?

Mein Link

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Breamarie91

Professional

Posts: 1,100

Location: Wisconsin

Occupation: I am working on a degree in nursing and would like to work in genetics!

Sunday, June 15th 2008, 12:25am

Yep! Erica is 9. My mom is due to have her 8th kid (Genavieve Rose) on August 5th, so there was bound to be another PKU kid in the family some where and I guess Erica got to be that lucky one.

~It's not about waiting for the storm to pass, it's about getting out there and dancing in the rain~
Breanna Hardy 19 CPKU

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Rael

Trainee

Posts: 62

Sunday, June 15th 2008, 3:15am

I I drink xp maximum unflavoured with water 2x a day and lately I have been using a flavoured sippa straw.

I also like vitaflow cooler sachets unflavoured but cant seem to be able to get them lately. I actually prefer these because they are low volume.You do need to mix with water but i like that they are premeasured packets.

Raelene

This post has been edited 1 times, last edit by "Rael" (Jun 15th 2008, 8:38am)

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tanileinchen

Master

Posts: 1,977

Location: Deidesheim, Germany

Occupation: SAP-Anwendungsentwicklerin

Sunday, June 15th 2008, 8:26am

I drink my PAM with lemon powder and water. PAM anamix, which I also use, is pre-flavoured with wild beere or chocolate. It just must be mixed with water.

Liebe Grüße :love:

Tanja

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Maria

Moderator

Posts: 859

Location: Toronto, Canada

Occupation: nutritionist, technical specialist at Swiss Herbal Remedies

Sunday, June 15th 2008, 4:41pm

I'm taking PKU Express 3 times per day (when pressed for time - 2 - 2 packs in one set and 1 in the other)- it's low volume formula, comes in many flavors. I like tropical and orange. Sometimes I mix unflavored with raspberry or black currant flavour (but it's very sweet).

Carpe Diem!

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Gosia

Moderator

Posts: 1,498

Location: Poland

Sunday, June 15th 2008, 5:09pm

My Formula is Milupa PKU3. I am taking it 3 times a day, before my meals, mostly with water. Sometimes I am having it with water and cranberry juice.

Greets

'Where you live should not decide
Whether you live or whether you die'

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Rissa

Intermediate

Posts: 296

Sunday, June 15th 2008, 7:05pm

I drink my PAM with apple juice. I am taking it 3 times a day.

lg Rissa

You laugh at me because I’m different, I laugh at you because you’re all the same.(Kurt Cobain)

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nele

Beginner

Posts: 6

Location: Belgium

Occupation: school: hairdressing

Sunday, June 15th 2008, 10:15pm

At the evening I drink a mix of Phenylade Integral and Anamix ( I shake it with water, vanillasugar and oil). The rest of the day I take tablets of Aminogran an 5 of the Phenlex-10 vits. This is until the end of this month. Because they can't make the tablets anymore. So I most test again other formula's like 3 years ago. When they decided to take the Phenyldon AM away.

(I'm still angry about it) I was on a bloodlevel of 6 and went in 3 days into 12 becouse the change. I don't want it happening again. There is nothing that has the same satisfying taste of Phenyldon. But we will see how it goes. I have to go to taste it in the medical centre in July.

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Breamarie91

Professional

Posts: 1,100

Location: Wisconsin

Occupation: I am working on a degree in nursing and would like to work in genetics!

Monday, June 16th 2008, 3:18am

That stinks, I've had formulas discontinued on me aswell and it's never fun. About a year ago I was taking Phenex chews, which were basically chewable tablets and I swear I ate them all day like candy!! I took them (along with the coolers) for about 6 months and then they were discontinued, I was so upset

~It's not about waiting for the storm to pass, it's about getting out there and dancing in the rain~
Breanna Hardy 19 CPKU

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debbie colyer

Professional

Posts: 1,265

Location: Sydney

Occupation: Vodafone Foundation World of Difference Program

Monday, June 16th 2008, 5:59am

Hi I am on the vitaflo coolers purple and white three times a day. I have the white coolers with different flavoured straws which adds variety to my day. :thumbup:

debbie colyer

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Rael

Trainee

Posts: 62

Monday, June 16th 2008, 6:19am

Do the vitaflow coolers taste the same as the PKU express sachets, are they the same? Is the white one flavoured.

Raelene

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debbie colyer

Professional

Posts: 1,265

Location: Sydney

Occupation: Vodafone Foundation World of Difference Program

Monday, June 16th 2008, 8:06am

The Vitaflo coolers are the same as the PKU express sachets I believe however the white isn't flavoured at all so I have the drinking straw that we can buy from the supermarkets

debbie colyer

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tas79

Beginner

Posts: 6

Location: New Jersey

Occupation: Environmental Consultant

Friday, June 20th 2008, 7:15pm

I take Phenylade Essential and Phenylade 60. I have been taking the Phenylade Essential in Strawberry, Chocolate, and Orange Cream flavors. The Phenylade 60 only comes in vanilla - but I mix it was the other Phenylade Essential flavors, kool-aid but no sugar, or Vitamin water orange flavor. Formula has come a long way over my lifetime......

Tara

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Ali

Moderator

Posts: 388

Location: Garibaldi, OR

Occupation: Teacher

Saturday, June 21st 2008, 10:52pm

How does the Phenylade 60 taste? I've been wanting to try that. Also, has anyone tried the formula line from Cambrooke Foods? They are sending me samples even though I told them I was perfectly happy with phenylade amino acid blend.

Ali Dietrich
24 PKU
Rockaway Beach, OR (USA)
My PKU Site: The PKU Place

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nickb9

Beginner

Posts: 2

Location: nor*cal

Occupation: kid?

Sunday, June 22nd 2008, 4:24am

i drink paraflex 3 times a day. tastes like poo :thumbup:

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