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PKUScott

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  • "PKUScott" started this thread

Posts: 1

Location: Essex, England

Occupation: Catering Assistant

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1

Monday, June 29th 2009, 9:22pm

Hello and nice to meet you all!!

Hello, my name is scott.. im 17 years old and i live in essex, england..1st off i would like to say, i have PKU.. for some time now i have not been sticking to my diet. and not been drinking the supplement that i need to. i have the coolers. i am getting to the mature stage in my life now where i am starting to realise i really need to change my life.. for a while now i have been eating far over what i should be. every day.. i NEVER eat any thing that is forbidden to eat in PKU, but large quantitys of things that i am.. now im trying to change. i just need help and advice to get me through it. is there anything anyone can say to help me or tips that i can use..

another question is about Kuvan. this was introduced in Jan 2009. is this available in England ? if so.. i would really like to give it a go.. i just need to find out how to go about doing that.

Thanks people, any questions to me i will answer with the truth. and any advice will be greatly appreciated.

Engelchen

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Posts: 12,144

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2

Tuesday, June 30th 2009, 11:21am

hello scott!

welcome on the board!
maybe we can help you!

i wish you fun and i hope you can change and take your pku on.

(sorry for my english.. :wacko: )

greets, angel ;)
Mein Link
Lilypie Erster Geburtstag Ticker

kelliwrenn76

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Posts: 2,038

Location: michigan

Occupation: housewife/editor/run an ebay store

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3

Tuesday, June 30th 2009, 6:21pm

welcome!! we are here anytime you need us. good luck!!!
Kelli
kelliwrenn76@yahoo.com
write me anytime

KateGilmore

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Posts: 4,068

Location: Heilbronn, Germany

Occupation: Europasekretärin

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4

Tuesday, June 30th 2009, 6:51pm

welcome to the board :D By the way, I'm an England fan :D :D

rich

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Posts: 68

Location: London, UK

Occupation: Sales

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5

Sunday, July 5th 2009, 8:35pm

Welcome!

Hi and welcome to the board!



I wanted to say good on you for realising you need to concentrate more on the diet - that ios definately the way to go! I'm from England too and have been on the diet most of my life! However I have been on Kuvan the last few years, so I can help you with any questions on this. The one thing I would say is that it is best for use in conjunction with the diet and not as a complete substitute for it. This is why it is still important to focus on ths diet.



Let me know if you want a chat about it all, as I would be happy to help!



Cheers,


Rich
Richard Noble-Nesbitt
PKU , 37
London, UK

Gosia

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Posts: 1,498

Location: Poland

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6

Saturday, July 18th 2009, 10:35pm

Welcome on the board! ;)
Good luck with returning on diet. If you have any questions just ask and we all will try to answer them for You and help You.

Greets
Gosia
'Where you live should not decide
Whether you live or whether you die'

Inge

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Posts: 19

Location: The Netherlands

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7

Saturday, July 25th 2009, 9:36pm

Hey,



Welcome to the board! :thumbsup:



Greetings

Inge

Paul

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Location: Eindhoven, the Netherlands

Occupation: Software Engineer / Tester

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8

Monday, July 27th 2009, 8:53am

Hi Scott;

A bit late, but welcome ! :D

Greets;

Paul
Paul van Berkel
34, PKU
Eindhoven, The Netherlands
Boardmember of the Nederlandse Phenylketonurie Vereniging (NPKUV)
paul@pkuvereniging.nl
www.pkuvereniging.nl

-- Do what thou wilst shall be the whole of the law (A.C. Crowley) --

Timothy

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Posts: 2

Location: Michigan... for the moment

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9

Sunday, August 2nd 2009, 5:24am

Welcome to the board.
:D

shaneira

Professional

Posts: 929

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10

Sunday, August 2nd 2009, 8:46am

Hi Scott!

Welcome to the board. I hope, that you will have fun here and that you get answers if you have any problems or questions.

Greetings from Germany Andrea

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