Pku Board

I've googled and googled but I can't find any info about untreated PKU for adults. I have much problems with my health, I can't barrely stand it any more. My thougts is, can you have PKU that makes ju feel sick when you gets older? As child I began to have tremors in my hands, very light but still. Today my tremor is so incresed that I have trouble with it very often, now the tremor is in my legs too, and head/neck. Other symptoms that I have is extreme fatigue, pains (a lot of them), dizziness, trouble with concentration (very much), sleeping problems, depression, sinusus problems, bad memory, swollen lymph nodes, mood swings, muscle twitching, cold feets.. Yeah the list is long, I should go to a doctor and look this up. They havn't found any other cause, yet... so yeah. And my son have PKU, is there a chance that I can have it too? Well he has the worst variant of PKU, is there at least any little chance that I can have PKU when I have a son that have it? And can I have a variant that he doesn't have then? Thanks for any answers. And my age is 24 btw.

Thanks for all your answers, really appreciate it! I think I got what you guys wrote, my concentration is really really bad. As fast as I read to much text I feel like dizzy or something. Well.. I will sure get tested, I don't know when but as soon as I can. Going to see my neurologist pretty soon again so I can ask they if they can run a test or I can just call the PKU lab and ask if they can send me that paper ju get blood on and send it away. I was in contact with them for a year ago, I did the test home and sent it away but they never called.. So well, I will call them when I can. Now it's christmas time and everything.

I think I am going to try to stay away from high protein food a while, my pains goes in periods and I've already 1-2 years ago realized that after eating food I had fatigue and felt very strange, ill.. I'm in a little period now with pains again, finally got out from one recently.. It's like today, I haven't eat a thing and I don't have this extreme pains that feels like be cutting up from the inside. I don't know if it's a coincidence.. But I think it's worth a try and hold to low protein food. I really like the most food so, unfortantly I know there isn't much food in the store without proteins.. But I like sallads and so on, or I love it! Well I think I'll try for a time or so

I saw a video on youtube a while ago, a girl that explained a little about her PKU and so on.. She explained that if she eat a hamburger today the symptoms for eating it could come a week after and.. didnt have to come directly. But I guess everyone is different in this case to like in everything else. Well, thanks for your responses really!! Feel free to write or ask anything you want.

Edit: To KateGilmore:

I am under investigation for my tremors, have only seen my neurologist doctor once and I talked about my other symptoms but somehow all the doctors don't listen or take you for serious. Mostly doctors here says all is in your head, well if they could feel what I feel they would know I suffer!! And I am from Sweden

Merry Christmas!