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Wednesday, April 9th 2008, 3:21am

Alcohol and pku

I was just wondering (aldults) if you drink Alcohol, and if you do what type and do you know the Phe content.

I have no idea. WHen I was a teen I asked my doc, and his answer was form a docs point of view.

SO of course he said just dont drink it, but if you do, only for a toast and make sure it is mixed. Like wine and juice, but no beer.

I never thought to ask my dietician at the time.

Of coarse when I was a teen I had a few, but because I didn't get a straight answer I just drank what I felt like.

I found I got very sick easily! But to this day I dont know what the better option is.

Luckily I am a non drinker, as I find all alcohol tastes like poison anyway.

What are your thoughts on alcohol on the PKU diet. Do you think we get sicker or have worse hangovers than non PKU people, and do you drink alcohol?

Just curious....
Raelene

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Wednesday, April 9th 2008, 4:24am

Hi Rael,

I don't drink alcohol as I get really sick from it like you. I know that I standard glass of wine is 15mg of Phe or even 1 unit/exchange. I know baileys, red wine has milk solids in it so I don't really know the Phe contents in red wine.
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Wednesday, April 9th 2008, 2:02pm

actually you can drink 3 glasses of wine before you need to count it. Only have to watch out for beer and mixers. mixers are ok but make sure no one uses diet soda with it.
Laurie Schreiner
PKU it isn't just a kid's disorder

4

Wednesday, April 9th 2008, 9:39pm

i drink occasionally , i drink mostly fruity and frozen drinks . like daquries, belinis and margaritas. i also drink the occasional Malibu rum and pineapple banana juice or vodka and juice. I don't count the Phe in them and i don't get sick .. however if i drink beer i do. so i don't. i hate the stuff. even the smell makes me sick to my stomach. i asked my detican when i was a teen and they said vodka in moderation is not bad for u cause its made from potatoes , however beer is cause its made from higher Phe products such as weat.

im not a big drinker, usually one with a dinner out or special occasions liek birthdays and new years. i do not drink whine cause i cant stomach anything carbonated.

hope that helps. i don't encourage drinking especially to minors however i do feel that the information should be provided so they can make there choices wisely. if u don't provide the information or keep it from them then it makes it more intriguing.

consuming alcohol should not be taken wisely and it is your responsibility to no your limit and stay smart. Don't drink and drive. have an alertinive way to get home and have a few plans!
Amanda Cosburn LPN
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Thursday, April 10th 2008, 3:55am

I have a taste for microbrew beer (microbrews are big here in the northwest). I see that domestic beer is around 3-4 exchanges and I never have found out what microbrews are. My doctor said the darker the beer, the more Phe it has in it. I have a taste for really super bitter beer and I know that they have a lot of hops. I wonder how much Phe is hops.

I wish someone could actually figure out the amount of Phe in each different type of microbrew (stouts, red ales, ipa, ect).

I drink wine occasionally. I used to drink rum or vodka mixed with soda.
Ali Dietrich
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6

Friday, April 11th 2008, 12:51am

Thank you for your responses. I have always been curious.
I feel the information should be there for everyone so they can make an informed decision.
Raelene

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Monday, April 14th 2008, 9:47pm

Hi Rael;

It depends on the occasion. Normally when I with Annet we drink red wine, that is something we both like very much. When going to a pub/club I drink either beer or vodka/bitter lemon or a local drink. I do not know exactly how much Phe there is in beer and wine. I know wine contains some Phe, but not too much. Beer is another story ;) but I always compensate it with what I eat before I go out. Luckily I am allowed lots of Phe (compared to most) so I always have some phe's per day left.

Greets;
Paul van Berkel
Eindhoven, The Netherlands
Volunteer at the Nederlandse Phenylketonurie Vereniging (NPKUV) / Dutch PKU Association
ESPKU Representative for the Netherlands
paul@pkuvereniging.nl
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Tuesday, April 15th 2008, 11:08am

Hi Ali, I have some Info on the amount of Phe in beer for you:

amount of Phe in mg per 100g beer
Pils: 4
dark beer (like ale): 9
wheat beer 4
malt beer 11
alcohol free 11
http://www.pku-info.org
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Tuesday, April 15th 2008, 7:15pm

thanks for the info!!
Amanda Cosburn LPN
26CPKU
Kamloops, BC Canada
http://www.amandacosburn.wordpress.com


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Tuesday, April 15th 2008, 9:47pm

Quoted

Originally posted by j_h
Hi Ali, I have some Info on the amount of Phe in beer for you:

amount of Phe in mg per 100g beer
Pils: 4
dark beer (like ale): 9
wheat beer 4
malt beer 11
alcohol free 11


Thanks! That helps a lot.
Ali Dietrich
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Thursday, April 24th 2008, 7:20pm

I usually just drink beer, of course I do count this. Sometimes martini when I don't have Phe left for beer. And an occasional whine when i eat in restaurant.

But I don't think people with PKU are more sensetive to alcohol, get drunk more easyly, or have a worse hangover than people without PKU. For myself, I can take alcohol pretty good, I need to drink quite some beers before I'll be drunk or sick. I usually don't have hangovers, not even when I drank a lot/too much (which does not happen often, can't remember the last time ;)) so I'm really glad about that.

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Wednesday, October 22nd 2008, 10:04pm

Actually i didnt know there is any Phe in the alcohol... ?( It seemed to me there is none as i read once in one of the brouchers with the nutrition facts its got none. Of course unless you add milk or any sugar free or diet products.... But guess even if some of us get drunk easier it shouldnt be that bad right ;) ??? Well i dont get drunk fast personally but i noticed that becouse of our diet's specific menu (less fat an caloric meals -veggi based in general) it might be easier to get the top point of alcohol consumption abilities.

Sending greets

Paulina

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Thursday, October 23rd 2008, 2:10am

Australian red wine is based on milk solid, and can be made out of fish plus peanuts so I am glad that I didn't have any. I have no idea why they need to put all this stuff into red wine? Unfortunately there is Phe in everything we comsume to some extent. :(
Have a great day
Cheers
Debbie :)
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Thursday, October 23rd 2008, 8:01pm

Well, thats a bit of news for me. That means Phe for beer like above, but now we mention the beer and the wine most of all . So what about vodka or Martini for example... does it mean they have even more phe?.... I mean vodka and martini are through even more transformations than beer proably so i really am affraid it might have even more Phe acuallly?!.... Anybody thought about it and has got any news to share?....

Thanks ,and take care :)

Paulina

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Thursday, October 23rd 2008, 8:18pm

Paula I did search the web and here`s what I found;

Vodka has 0,00 g of protein and red wine depending on kind(red, white, sweet or dry) 0,00 g to 0,5g of protein. I couldn`t find any info on Phe but there is not much to count in these cases.. .

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Sunday, October 26th 2008, 8:04pm

Vodka is good :) especially smirnoff and zubrowka :D:D:D (right Gosia ?)

Greets;
Paul van Berkel
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Volunteer at the Nederlandse Phenylketonurie Vereniging (NPKUV) / Dutch PKU Association
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Monday, October 27th 2008, 8:45am

i like Campari Red Bull :D

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Monday, October 27th 2008, 7:26pm

Vodka is good :) especially smirnoff and zubrowka :D:D:D (right Gosia ?)

Greets;


Yeah Paul I know you love zubrowka (żubrówka)
I like wine esp.: red wine :)

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Wednesday, November 19th 2008, 3:48am

I definitely disagree that people with PKU get sick and hungover easier with alcohol. I know I can hold my alcohol better than 98% of the people I have drank with. If you drink enough water before going to bed while drinking, you can completely negate the effects of the hangover.

PS: I :love: beer
23 years old, mild PKU

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Thursday, November 20th 2008, 6:02am

I was actually told by my Human Anatomy and Physiology teacher that eating tons of fruits and veggies (mainly fruits) can help tremendously with hangovers. I don't remember exactly what she said but it has to do with staying hydrating, but not getting it directly from water. Don't ask me why she was telling this to high schoolers LOL!
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