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Thursday, July 28th 2011, 9:29am

Is it possible to gain muscle with PKU?

Hey everyone.

I'm 15 y/o male and I have PKU. My diet has become pretty liberal compared to what it used to be due to Kuvan (Now my average Phe intake is around 120-130, whereas it used to be 25-30) and I still take 50g of Phenex 2 everyday. but I have some questions. I personally look very skinny when compared to others and have barely any muscle. (5'9" and 127lbs) I run, but I have not experimented with any sports along the lines of football and soccer.. nor do I perform intensive weight training. Is it possible, if I lift weights and workout routinely, that I can POSSIBLY gain muscle mass? or will my limited protein intake make it pointless?

Thanks!

Paul

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Thursday, July 28th 2011, 10:17am

Hi Kalemtan;

Great to hear you respond to Kuvan. Of course it is possible for you to gain muscle mass. Personally I have played waterpolo for some 20 years and because of that have gained muscle too. Intensive training or bodybuilding is possible too of course. You will have to consult your dietician to make sure you get enough protein and vitamins. She can consult you on how to adjust your diet to keep within the boundaries of your diet AND have enough food sources to enable you to participate in the kind of training you would like. I'd advise you to do the training under supervision especially since your body is still growing / developing.

Greets;

Paul
Paul van Berkel
Eindhoven, The Netherlands
Volunteer at the Nederlandse Phenylketonurie Vereniging (NPKUV) / Dutch PKU Association
ESPKU Representative for the Netherlands
paul@pkuvereniging.nl
www.pkuvereniging.nl

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Maria

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Friday, July 29th 2011, 3:53am

I agree with Paul, definstely its possible, butva chat with dietitian would be helpful. As for me i find personally it was hard to gain weight but once i got it, i kept it without problem ( talking about muscle mass) . I' ve been practicing kung fu for several years, now it' s mostly extreme hiking/ trekking, biking, diving.
Overall, we do get all the benefits of exersise and it's somewhat easier to manage PKU once you have an exersise routine
So go for it!
Carpe Diem!

Abyss

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Thursday, September 15th 2011, 11:49pm

ive never had a problem getting muscle with PKU for me it was all about exersizing and it seemd to grow

cjwarbin

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Friday, September 16th 2011, 3:43am

I had a problem, but it was more because I didnt access all the available information for me. I have classic PKU and I'm 5'6'' and I Use to weigh 118lbs soaking wet, with in about a month and a half I managed to pull off a weight of 126lbs of pure muscle mass. I wish I knew about all this stuff when I was younger. All I did was talk to my dietitian and she helped me gain! I consume a lot of calories lol

Maria

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Sunday, September 18th 2011, 2:04am

yep, overall intense physical activity is great for our PKU metabolism.
Carpe Diem!

This post by "22football" (Monday, July 2nd 2012, 4:02am) has been deleted by user "Flashdancer" (Monday, July 2nd 2012, 6:13am) with the following reason: werbung

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