The descendents of Bickel, Følling and Guthrie have all been part of the E.S.PKU Conference 2015 in Berlin, Germany.
If you have missed the opportunity to hear them give their presentation here is your chance to view them.
A few years back E.S.PKU has conducted interviews and gathered data in 5 countries in order to compare how PKU is treated.
Results showed that the treatment is vastly different throught Europe. This was the starting point for future efforts of E.S.PKU.