Deutsche Interessengemeinschaft für Phenylketonurie
The DIG-PKU was founded 1975 by 8 parents, whose kids have PKU. Until today there are about 1550 members on the DIG-PKU. The main objective is to care for PKU as well as other inborn errors. The DIG-PKU is divided into 16 local groups as well as four groups for "Organoacidämien", "Harnstoffzyklusstörungen", "NKH" and "Tyrosinose".