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  • Hi, Sorry, before I will answer your questions, I've got a question myself... Are you really from Germanyy? Because if you were, I would prever to answer in german... I'm not really good in english (I feel not save enought ). But I will try to do my best. I'm nearly 30 years old, have classic PKU and last year I became mother of a healthy daughter. She came 2 weeks earlier, but thats no preevie... So there are at last many points were I have to say "maybee!" I'm not a doc, sure there are some po…

  • MPKU

    Krümel - - Maternal PKU

    Post

    Hi Carrie, here are some pregnant Ladies. I'm actually not, but I was last year and I have PKU. My daughter is nearly one year old. She doesn't have PKU or something else. Lg, Krümel

  • I' ve heard of them last summer. Prof. Muntau gave a lecture about the results of research in Munich. It was very intressting. She talked about a Phe monitoring Kit, that will be practical tested in Kliniks in the USA 2012. It will come to Germany for tests, too.

  • breastfeeding

    Krümel - - Maternal PKU

    Post

    Hi Maria, my daugther ist 6 month old, and I'm still going on with the breastfeeding. My diet is not very strikt, but I take my formular every day. That's very important. If I forget only 1 formular two days in a row, there ist much les milk than the other days. Would you like to release the diet? I'll still going on with, after the breastfeeding.

  • Hi Keyleigh I wrote you a message

  • Hi Kate, normaly I have those cornflakes of kelloggs. With orange juice or lp-milk. Sometimes I cut a bit of apple, banana, or nectarine inside. For breakfast i have ca 20g. After that I take my formula, then I am pleasantly full. Choco Krispies are 262phe per 100g chombos 275phe/ 100g cornfalakes 352phe/ 100g Corn Pops 229phe/ 100g crunchy nut 279phe/ 100g froot loops 396phe/ 100g frosties 233phe/ 100g smacks 383phe/ 100g according to the list...

  • My breakfast is toast with butter and cucumber discs in addition salt or Fondor (something like Herb salt). Or evenly toast with jam, honey or something else. At some days i'm eating corn flakes, with orange juce or Lp-milk. After breakfast i take my formula.

  • Advice on Kuvan

    Krümel - - General topics about PKU

    Post

    sorry, you are right! Ithink it's enticing to use the lanangue which ist more easily. But I will try my best

  • Advice on Kuvan

    Krümel - - General topics about PKU

    Post

    @phelinchen BH4 kenn ich ja, aber Kuvan klingt als ob das für jeden möglich wäre. BH4 ist nicht für alle geeignet...

  • Advice on Kuvan

    Krümel - - General topics about PKU

    Post

    Thank you for these infos. I only know about BH4, but thats not the same. Kuvan is in Germamy unknown, as i know. In a week we have an event where many PKUler about 16 years from all over Germany met. There I will ask, if someone maybe had heard about Kuvan, too.

  • Advice on Kuvan

    Krümel - - General topics about PKU

    Post

    hi Monika, can you tell me what Kuvan is, please? I have never heard bevore about this... Krümel

  • PKU in New Mexico

    Krümel - - General topics about PKU

    Post

    Hi everyone, Last time I visited the English part of this forum more than the German one. Because it’s matter of fact that my boyfriend has got the chance to work in New Mexico, USA for 3 or 6 years. This is very interesting for both of us. So we maybe are going to live in the USA, especially New Mexico for 3 years or more. I think it’s important to know how it works with PKU before. How do you handle with clinics (is there a clinic where a doctor/a dietician knows something about PKU?) and how …

  • Metzgetrei walter schott

    Krümel - - General food topics

    Post

    Hi, I'm close to sabrina. I can have 400 PHE so I take not much of the sausages. Only sweet things like jam, hony and so one is going to be boring. There isn't so much salty or spicey. So I prever to take a bit of these sausages, than nothing or sweet.

  • Metzgetrei walter schott

    Krümel - - General food topics

    Post

    Yes, they have That was new for me, too. Here comes the link: metzger-schott.de/ If you click on the field "Online Shop" you will find in the PKU Produkts at the left side. Hope I could help. Greets Jenny

  • Metzgetrei walter schott

    Krümel - - General food topics

    Post

    I don´t know... let me have a look. If they have, I will find it out

  • Metzgetrei walter schott

    Krümel - - General food topics

    Post

    Hi, I love the products of "Metzgerei Schott" ! He has got normal products, but even some with a lower PHE level. They tastes nearly as normal ones. Hmmm