Dear PKU Community,
Today is a very special day for the PKU community, especially for the European. We are happy to announce that after the publication of the “10 Key Statements” in January today the full version of the European PKU Guidelines have been published on Orphanet Journal of Rare Diseases. As with the previous documents we are happy that it is open access so you can go read them yourself.
Now it’s our time to make those guidelines known. It’s the PKU community that needs to come together and help establish this guidelines. Please help spreading the message about the publication of the guidelines by sharing our social media announcements or this post. It’s us who need to share the message with PKUs, Caregivers and of course professionals!
Start reading right now, click the image to get to the Orphanet Journal of Rare Diseases!